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Wisconsin Long Term Care Advisory Council

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Charge of the Wisconsin Council on Long Term Care

September 28, 2001

It’s important for the Department of Health and Family Services to have the advice of consumers, providers and the public in the important policy decisions that need to be made. The Council on Long Term Care is appointed to be the key advisors to the Secretary on the overall long term care system. The challenge for the Council is to provide the Secretary with advice on how we can accomplish the goal of turning our current long term care system into one that focuses on community living whenever possible within the resources available to the Department.

The Council will be responsible for the following:

Family Care Monitoring and Oversight

bulletMonitor the progress of the Family Care pilots.
bulletEvaluate the progress of the pilots on whether they are accomplishing the goals of Family Care and Long Term Care redesign, starting from a neutral stance that does not assume Family Care is the answer to all the long term care issues in the state.
bulletAnalyze whether or not Family Care is an affordable option for the future.

Long Term Care System Monitoring and Oversight

bulletServe as the overarching advisory group that will review the long term care system as a whole. In particular, the Department will be looking to the Council for advice on how to structure changes in the long term care system in an affordable manner, with special attention to how the various long term care programs intersect. People often do not fit neatly into one category or another and may need to transition from one system to another. All the systems need to work together and the Council is to monitor how that is happening.
bulletReview and monitor the progress of the Children’s Long Term Support Redesign and issues affecting children as well as adults that need long term support.
bulletReview and monitor the progress of the Mental Health/AODA Managed Care pilots and the mental health system in the state.
bulletProvide advice as to how well the various components of the systems are integrated. The Department has received excellent input from the Blue Ribbon Commission on Mental Health Implementation Committee as well as from the Children’s Long Term Support Redesign Committee and will continue to receive their advice. However, it is important for the Secretary to have one body that integrates the various pilots and proposals for long term care systems change.
bulletIdentify the current unmet need for long term care services and develop recommendations to the Secretary on how to address the challenge of serving individuals in the most integrated setting appropriate to their needs. The Council will involve key stakeholders in an evaluation of the current long term care system and how it can be improved to assure the state continues to meet the requirements of the ADA T.II and recent court decisions that clarify the state’s responsibilities. Where the courts haven’t provided clarity, advise the Department on your ideas for the best approach for Wisconsin.
bulletA particular challenge will be to advise the Secretary on how to accomplish the goal of turning our current long term care system into one that focuses on community living whenever possible and to do so within the challenging state fiscal environment. The Council will help the Department prioritize the unmet needs in the area of long term care within the resources provided to the Department, as well as ideas on how we can use the current state resources to generate additional federal revenue to meet those needs.
bulletInvestigate and analyze why Wisconsin spends so much more on community based long term care, compared to other states, and yet has such long waiting lists for the Community Options and the Home and Community Based Waiver programs. How are the systems in those states different from Wisconsin?
bulletInvestigate the major emerging issues in long term care. How can the Department better promote prevention efforts for the population in order to reduce the burden of long term care in the future? How can Wisconsin better support the families who make extraordinary sacrifices of time, opportunities and money to care for a frail parent, spouse, or child with a disability?

Vehicle for Stakeholder Input

A seventeen-member group is still too small to have all the long term care stakeholders at the table. For this reason, the Council will need to tap into the other state councils and committees that work on issues related to long term care. This group may also want to make use of a number of other vehicles to get increased representation of the many voices of the long term care stakeholders in Wisconsin. This could include adding subcommittee members to address areas where additional expertise is needed, sponsorship of community forums or focus groups, and getting input from the Local Long Term Care Councils. The Council members are asked to be a resource and link to other stakeholders and groups.

Council Duties

Specifically, the Council will be responsible for reviewing and commenting on the following:

bulletThe development of future contracts with the Family Care Resource Centers and Care Management Organizations (CMOs).
bulletThe Family Care benefit package and rate structure.
bulletThe patterns of enrollment and disenrollment from Family Care, Partnership, PACE, COP and the Waivers as well as the Medicaid fee-for-service programs.
bulletThe quality of the long term care system, including complaints, grievances and appeals related to Family Care, as well as other long term care services and programs.
bulletThe development and implementation of the Children’s Long Term Support Redesign and the children’s waiver and how it will fit into the overall long term care system in Wisconsin.
bulletThe development and implementation of the Mental Health and AODA pilots and how they fit into the overall long term care system in Wisconsin.
bulletWorkforce strategies for addressing the workforce issues in long term care.
bulletFuture budget proposals for long term care programs and services.

In addition to advice on policies, the Council will:

bulletServe as a conduit for input from and support to the local long term care councils.
bulletEvaluate the progress and affordability of Family Care in light of the current fiscal realities of the state budget.
bulletMonitor the overall long term care system.
bulletDevelop recommendations for system improvements to ensure that older people and people with disabilities are served in the most integrated setting appropriate to their needs.
bulletRecognizing that the demographic bulge of baby boomers are entering their retirement years, review how the current system supports prevention of long term care, as well as the informal caregivers who are the backbone of the long term care system.
bulletProduce an annual report to the Secretary on the key findings of the Council.

Content Contact: Wendy Fearnside
Last Modified:  Wednesday, March 09, 2011